A Chronology of Pain and Comfort in Children With Sickle Cell Disease
Article Abstract:
A study of children with sickle cell disease (SCD) has established eight distinct phases of pain during an attack as seen from the child's perspective. The incidence of SCD is about one in 375 children, mostly African American. In establishing a chronology of pain and care, 21 children and adolescents participated in the study, with care givers providing descriptions which accurately reflected the patients' experience. The pain of SCD, aside from that of various complications which accompany the disease, is from occlusion of the vascular system due to sickle cells clumping, blocking the blood flow.
Publication Name: Archives of Pediatrics & Adolescent Medicine
Subject: Health
ISSN: 1072-4710
Year: 1999
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Liver involvement in white patients with sickle-cell disease
Article Abstract:
Liver deterioration may not be a problem in white patients with sickle-cell disease. Researchers in Italy evaluated 40 patients with sickle cell anemia and 102 with sickle-cell disease for liver involvement and cholelithiasis, which is stones in the gall bladder and bile ducts. Only two of the 142 patients experienced changes in liver function. Cholelithiasis was found in 42% of patients with sickle cell anemia, compared to 27% of patients with sickle-cell disease, and was more prevalent in early childhood in the anemic patients.
Publication Name: Archives of Pediatrics & Adolescent Medicine
Subject: Health
ISSN: 1072-4710
Year: 1996
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Preventive Services Received by Adolescents With Cystic Fibrosis and Sickle Cell Disease
Article Abstract:
Many teenagers with cystic fibrosis (CF) or sickle cell disease (SCD) are not receiving advice from their doctor on risky behaviors. In a survey of 321 teenagers with CF or SCD, half of both groups said a specialist was their primary doctor. About half received advice about sexuality, weight and dieting, but fewer than one-fifth received advice about weapon carrying or fighting. Teenagers who had a general practitioner as their primary doctor were no more likely to receive advice on these topics.
Publication Name: Archives of Pediatrics & Adolescent Medicine
Subject: Health
ISSN: 1072-4710
Year: 1999
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